The studies can be conducted by various actors: the Carnot CALYM institute, hematologists, healthcare professionals, socio-economic actors, companies developing drugs, etc. All projects will be validated in advance for their scientific interest and conducted in accordance with current legislation to protect your data.

The studies will rely on the analysis of clinical data already contained in patients’ medical records. For example: the number of patients diagnosed with disease XXX in the year 2021.

The data analyzed in these studies will not allow for a direct link to patients’ identities as they are anonymized or pseudonymized (each person’s name is replaced by a unique number). The actors involved in this research cannot link this number to a patient’s identity.

Below is a table listing the conducted studies, the study sponsors, the scientific and/or medical contact, the data used, the analysis period, and the study timelines.

These studies involve patients for whom certain relevant medical data has been recorded in the HemSys database to be discussed in MCM. If you are being treated in a healthcare facility using the HemSys software and you have not objected to the digitization of your data and its reuse for research projects, this has no direct implications for you.

You have two options:

– If you do not oppose the use of your data for studies using HemSys data: you don’t need to take any action.
– If you wish to oppose the use of your data for one, several, or all research projects: you should discuss this with the physician who informed you about the use of HemSys. This decision will have no impact on your medical care. You can also communicate your decision by writing an email to the following address: dpo@lysarc.org. You can find specific information in your information letter, on posters in waiting rooms, or from the medical staff in the hematology department of your healthcare center.